Skip to main content

Weird things we say and do on this journey...

My last few posts have been on serious topics. I think it's time for some lighter reading.

I herewith present:

Weird / crazy things we say or do almost daily on our special needs journey.



 1. "Are you high?" - this is something most, if not all, type 1 diabetic parents must have said to their type 1 at some point. When Jacques' blood glucose is high he gets very thirsty, after his second glass we usually start to consider a high blood glucose. You can imagine the looks we have received when strangers overhear us talking about our 14 year old disabled son being high.



 2. "Where are your pants, and your shirt, why are you naked?!" Boy oh boy, we ask these questions at least once a day. Jacques loves stripping, if his pants or shirt are slightly wet, he will strip, without any shame, where he is, in front of everybody. As you can imagine there has been quite a few embarrassing moments over the years.


 3. "No, don't, stop!" To late, there goes the cat, flying through the air, again. Our cats definitely have more frequent flyer miles than we do.


 4. "Say thank you." This is Ruben's favorite phrase to use on his brother. We call him the thank you police. If someone gives Jacques something and he doesn't immediately say thank you (or show in sign language at least), Ruben will remind him very quickly.


 5. "Not so loud, Jacques." This is a very common phrase in our house. When Jacques has the mouse or remote control for the tv he doesn't have a happy medium with the volume. It is either very loud or there is no volume, there is no in between.


 6. The next word we use A LOT in our house and needs some explaining because it is in Afrikaans and the english translation will sound very crass. Jacques only has a few words he can pronounce quite well. And "poepol" is one of them. Now, the translation is "asshole". And we use this word as a joke when we speak to him and about him with each other. When we are in other company and he uses "poepol" it quickly changes to "popcorn" as it sounds a lot alike when he says it.


 7. "Where are the janitor keys?" The janitor keys refer to all the rooms in the house's keys, including the security gates to and in the kitchen. If we ever loose these keys we will be royally scr#wed. These are arguably the most important keys in the house, more important than the car keys, even more important than the front door keys. If we lose them we cannot sleep on our beds, or get in the bathroom, thus these keys are worth more than gold in our house. And someone usually asks this question at least once a day.


 8. Jacques' way of apologizing when he has done something naughty is saying "skiesie" in afrikaans, which means sorry. He uses his index finger when he signs the word. We always tease that he uses the wrong finger, it should be the middle finger because he doesn't mean it. And we have adopted his way of apologizing to each other, but we do use the middle finger then😜.

Comments

Popular posts from this blog

Hobbies - sanity saving stuff!

 I haven't written anything in a while. Mostly because I've been keeping myself busy, quite productively I must say. I started a whatsapp group more than a year ago, where I sell items I find at thrift stores. I hit an emotional bump in the beginning of the year and stopped the group for a few months. After some self reflection, I started the group again, and it's been keeping me occupied. And thus away from sinking into depression again. Depression as a result of PTSD from special needs parenting. But I have posted about this before, and this post is about positivity and hope. So I won't be going into depressing subjects today. My whatsapp group's name is Interestingfinds. And that's exactly what I sell on the group. Treasures I find in thriftstores and similar stores. I also have a bidorbuy account where I sell similar items. But the whatsapp group has been really therapeutic. I get to interact with other people (electronically) and I have made quite a few fr

Our greatest fears came true for a friend of mine.

The third angel I had the privilege of knowing has passed away. And my heart breaks for all of the parents of the kids taken away so young. This is a pain I am not yet familiar with, but it is the pain I know that will hurt the most. This is the pain many special needs family's fear more than any diagnosis or treatment. The pain of saying goodbye to the person who formed you more than anything or anyone else ever could. And this special person formed the whole family dynamic. Everything revolved around their care. Vacations were planned around their needs. Their parents were absent for a lot of their siblings life. I fear for the time, just after the loved one will be taken, what will the sibling/s feel? How will they react? How will we react? I know there will be sadness, but what other emotions will be lurking around? Anger? Resentment? Maybe even a sense of relief? How will we deal with that? I think it's important to start dealing with these emotions wh

Footprints of a giant.

Isn't life strange? When I was a child I had a very close relationship with my father. He was my hero, I looked up to him and I have him to thank for my love for music. His passion for classical (and church) music was my inspiration and the reason I learned to play the piano. My mother was the reason I continued with the piano lessons. Her encouragement when I wanted to give up is what pushed me towards becoming a moderately talented pianist. I have come to realize, in the almost two years since her death, that my mother was my real inspiration in life. And thankfully she still is. When I am sad and discouraged, it is her voice I hear. I can hear it clearly in my mind, encouraging me not to give up, and then I feel her presence so very clearly next to me. And with her ever present nearness I have nothing to fear or be sad about. These last few years have been an eye opening experience. Ever since my mom's passing I have been struggling with my spiritual life. I h