Our story, our journey.....

I was thinking back to the first time we ever heard a diagnosis, and I was trying to relive the feelings and emotions I had at that time. I have come up with seven honest tips. I don't want to sugarcoat anything therefor some of the tips may even sound a bit harsh, it was not meant that way.  1. Breathe - take a deep breath and let it out. Take a couple more. It's going to be okay. Sounds cliché, I know, just do it. It may not feel that way now, but things will get better. You will get into a new rhythm and things will start to make a new kind of sense.  2. Talk to your other half - this is very important and gets neglected a lot of times. Tell your spouse how you feel. If you're angry, say so. If you're scared, admit it. This is a huge hurdle that has been placed on your path. Your journey is about to take a drastic turn, you need to be on the same page. If you are not on the same page, work together to get on the same page, otherwise things will only get wor

Writing - my childhood fantasy I have always had this silly dream of writing a novel. It started in my childhood. I have started a few times but have failed every time. I think the failures happened because I didn't have the right inspiration. I have however realized that I have the perfect inspiration for my long standing dream in my own circumstances. I would like to share my novel writing experience with my blog followers and I will post updates, as the novel progress, on the blog. The story may not make sense as I post updates on certain scenes etc. I ask you to please bare with me. I will share the entire novel with my readers when I am finished writing it and I believe it will make sense when completed. The title of the novel has changed once already and it could possibly change again. It was first simply titled - Brothers - as this is the main focus of the story. The bond between two brothers. But it is about much more than that. The current working title is: S

Hi all. I am issuing myself the challenge of posting something on the blog everyday of February, starting today (the last few days of January included). This coming weekend brings with it a big event in Jacques' life. It is his confirmation service on Sunday. Auntie Elna and oom Ruan are coming through especially for his big day and we can't wait. Ouma Mina bought his outfit, thank you again ouma and oupa. Auntie Elna will paint a tie on his shirt, it's the closest he will ever come to wearing a tie😜. The doctors didn't give this kid a year to live, he and God had other plans however. And that is why I want to celebrate this big day in his life although we will always be responsible for his soul salvation, I realize he will not be able to say the words of his confirmation vow. But I also believe that his soul is very ready for this vow. It is only his body holding him back and that's why myself and daddy will always take him to church as much as his c

"What do you do for a living?" Innocent enough question. But this question brings up so many mixed feelings. The short answer: I'm a stay at home mom. But my staying home looks a bit different from other stay at home moms. I'm a stay at home mom of a child with complex medical needs, a special needs child. I always struggle to answer this simple enough question. One part of me wants to answer it with just the stay at home mom part. I don't want to go into details, I don't want to give the reason for being a stay at home mom. And this has nothing to do with feeling ashamed, but everything to do with the reactions that will surely follow, especially if I have to go into details of Jacques' very lengthy medical background. The reactions are quite predictable by this time (almost 15 years since his birth). First the reactions are mostly of amazement and some times a bit of anger. Anger for the doctor not picking up on anything before birth. The amaz