Writing - my childhood fantasy may come true...

Writing - my childhood fantasy

I have always had this silly dream of writing a novel. It started in my childhood. I have started a few times but have failed every time. I think the failures happened because I didn't have the right inspiration.
I have however realized that I have the perfect inspiration for my long standing dream in my own circumstances.

I would like to share my novel writing experience with my blog followers and I will post updates, as the novel progress, on the blog.

The story may not make sense as I post updates on certain scenes etc. I ask you to please bare with me. I will share the entire novel with my readers when I am finished writing it and I believe it will make sense when completed.

The title of the novel has changed once already and it could possibly change again. It was first simply titled - Brothers - as this is the main focus of the story. The bond between two brothers. But it is about much more than that.

The current working title is: Sometimes it's a curse. But like I said it is likely to change again.

I have classified it as young adult fiction because I would love for Ruben to read it and it is therefor mostly aimed at the siblings of kids with special needs.

So for those brave enough to enter the special needs journey with us, keep an eye out for my first attempted novel.

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Where will our kids go??

A friend of mine, with a child with disabilities once told me that her biggest wish is that her child will die before she does. This took me by surprise to say the least, but then she explained to me the following. She does not have a support network. She is solely responsible for her childs well being. If she should pass away before him she has no-one to take care of him. Isn't this terrible! I know of a lot of special needs families in the same circumstance. If something should happen to mom or dad, what will happen to their disabled child?
In many instances the disability is so severe that the extended family members just doesn't feel equipped to take care of the disabled individual.
Unfortunately, as our disabled kids grow older, they become less "acceptable" for the general population. Things they could get away with in their earlier years are not acceptable as they grow up. But what people don't realize is that in most cases the disabled person did not &qu…

Rock bottom...

This post is very difficult for me to write. But it is part of my healing so here goes.

I was feeling so tired and so alone. I could not see light, I only saw darkness. I thought if this is it, if this is all there is I can just as well be dead. But if I'm dead what then? Where will I go? Will there be nothing? That can't be, there has to be something after death, but then there also has to be a God. And if there is a God then it is not as hopeless as I thought. And I could grasp and cling to that thought. I could see myself going on. That was the lowest point ever in my 37 years on earth.
What brought me to this point is a very long story. It started a little more than 14 years ago with the birth of my first born son.
I have always been a control freak, I like to plan and to feel in control of a situation.
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7 Things I have learned parenting my son with special needs

I will try to limit this list to the top 7 things I have learned on our journey thus far. There is a lot more but I will leave that for a follow up post.
1 - You appreciate the little things.
In our world even the little things are big things. When Jacques goes to visit grandma (who lives on the same plot as us), I get the chance to make a cup of coffee and drink it hot. This may sound like such a small thing, but after the third luke warm cup of coffee because you had to change his nappy, or pick up the pieces of popcorn he threw around earlier, that hot cuppa is a life saver😉.
2 - You have to have a sense of humor. When your 14 year old son leans over from the backseat to press the hooter on the steering wheel (for the fifth time in as many minutes) you learn to go with it and find it as funny as he does.
3 - You grow a thick skin.
Most people we meet on this journey are very understanding but you get the less than understanding folks. Jacques loves clapping hands when we go out t…

Our story, our journey.....

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