Skip to main content

Disabled - such an ugly word



Yes, Jacques is disabled, but unfortunately so many people only see the disabilities.
People are often amazed to learn how much Jacques actually understands. I think this is in a way our fault.

This has been a learning experience for us as his family, when he was younger it was a lot easier to just do things for him, especially in public.
I would feed him when eating out. He could do it himself, but it would be very messy, so to avoid the mess I'd just do it myself. At home he would eat by himself, no problem. I would just clean up the mess when he was finished.
Jacques can walk on his own, but when we're out we use his wheelchair. This is mainly to be able to control him a bit easier. This probably sounds strange but he is a big kid and very strong. I can control him a lot easier when he is in the wheelchair, when he is walking it can get nearly impossible to manage him. If he doesn't want to go where I want him to go and he is on foot he will just freeze or even sit down. This can be quite embarrassing, especially if he sits down in the door of a busy store.
Again, people have been amazed to learn that he can walk because they usually see him in the wheelchair.

This post is to brag a bit. To let everyone know (just a few things, there are tons more) what Jacques can do. Some may really find it surprising, and as mentioned above, don't feel guilty, it is mainly our own fault.

The videos attached show some of the things he is capable of, but there is a lot more. Our home language is Afikaans, I will try to translate everything that is said so that our english speaking followers can understand what is said.
In the first video I ask him to go into Youtube and show me Deal or no deal first, after that I ask him to show me "noot vir noot", one of his favorite afrikaans shows. 
In the second video I ask him to close the door, he at first ignores me, but then when I ask him a second time he does it. He was probably wondering why I was asking him such strange things. 

This is just a drop in the bucket, he knows all his colours and can point them out when you ask him. He loves helping in the kitchen and can cook rice (under supervision).
He can put on his own clothes, usually inside out, but he knows how.
There are a lot more and I will definitely post a brag post every now and then to remind us all how able he actually is.

Comments

Popular posts from this blog

Hobbies - sanity saving stuff!

 I haven't written anything in a while. Mostly because I've been keeping myself busy, quite productively I must say. I started a whatsapp group more than a year ago, where I sell items I find at thrift stores. I hit an emotional bump in the beginning of the year and stopped the group for a few months. After some self reflection, I started the group again, and it's been keeping me occupied. And thus away from sinking into depression again. Depression as a result of PTSD from special needs parenting. But I have posted about this before, and this post is about positivity and hope. So I won't be going into depressing subjects today. My whatsapp group's name is Interestingfinds. And that's exactly what I sell on the group. Treasures I find in thriftstores and similar stores. I also have a bidorbuy account where I sell similar items. But the whatsapp group has been really therapeutic. I get to interact with other people (electronically) and I have made quite a few fr

Our greatest fears came true for a friend of mine.

The third angel I had the privilege of knowing has passed away. And my heart breaks for all of the parents of the kids taken away so young. This is a pain I am not yet familiar with, but it is the pain I know that will hurt the most. This is the pain many special needs family's fear more than any diagnosis or treatment. The pain of saying goodbye to the person who formed you more than anything or anyone else ever could. And this special person formed the whole family dynamic. Everything revolved around their care. Vacations were planned around their needs. Their parents were absent for a lot of their siblings life. I fear for the time, just after the loved one will be taken, what will the sibling/s feel? How will they react? How will we react? I know there will be sadness, but what other emotions will be lurking around? Anger? Resentment? Maybe even a sense of relief? How will we deal with that? I think it's important to start dealing with these emotions wh

Embarrassing or infuriating?? Both.

This special needs journey has been entertaining. It has been scary. It has been educational. It has been down right depressing at times. It has been humerous. All of these emotions have been present for a while, and we experience most of them daily. It has also been embarrassing. But we got used to the dirty nappies at inoppertune times. We even got used to impolite stares and whispers. All of these moments have been embarrassing in a way, but we got over it and learned how to cope with them. We have recently begun to deal with issues that were not present before. It is embarrassing, but it also reminds me of how uninformed people can be. We attended my niece's birthday party and one of the moms told my sister that she was worried because my son would be attending. She was worried he would try something with one of the girls. Now, for those who don't know Jacques, that is just plain hilarious. It is funny because Jacques doesn't understand sexuality. And it is hilarious be