What makes a special needs family?

People can be cruel
Not think before they speak
But you just play the fool
Not bothered by what they seek

People can be curious
Or give you funny stares
Then you turn real serious
They're lucky all they get are glares

Cause mom's always there
The peacekeeper in her cape
Trying to keep things fair
With slaps and kicks we barely escape

Dads the back up, never far away
He's our own Clark Kent
We know he'll always stay
Lucky for us he's not just for rent

Lil bro brings up the rear
And he's wound tight
But it's not from fear
All he really wants to do is fight

Fight the rude stares and judgement
This little warrior protects his own
Mom and dad stand in agreement
Proud of how much he has grown

We didn't choose this life
And definitely wouldn't, had we a choice
But despite the struggles and strife
We still have reason to rejoice

This journey has not been dull
We have learned a lot
Met many interesting people
And oh boy, have we fought

Fought for acceptance
And sometimes we'd succeed
But sometimes had to distance
Otherwise we'd just bleed

So if you share our journey
Please comment and say hi
You can help us share our plea
And help us, the odds defy

Comments

Hobbies - sanity saving stuff!

I haven't written anything in a while. Mostly because I've been keeping myself busy, quite productively I must say. I started a whatsapp group more than a year ago, where I sell items I find at thrift stores. I hit an emotional bump in the beginning of the year and stopped the group for a few months. After some self reflection, I started the group again, and it's been keeping me occupied. And thus away from sinking into depression again. Depression as a result of PTSD from special needs parenting. But I have posted about this before, and this post is about positivity and hope. So I won't be going into depressing subjects today. My whatsapp group's name is Interestingfinds. And that's exactly what I sell on the group. Treasures I find in thriftstores and similar stores. I also have a bidorbuy account where I sell similar items. But the whatsapp group has been really therapeutic. I get to interact with other people (electronically) and I have made quite a few fr...

Our greatest fears came true for a friend of mine.

The third angel I had the privilege of knowing has passed away. And my heart breaks for all of the parents of the kids taken away so young. This is a pain I am not yet familiar with, but it is the pain I know that will hurt the most. This is the pain many special needs family's fear more than any diagnosis or treatment. The pain of saying goodbye to the person who formed you more than anything or anyone else ever could. And this special person formed the whole family dynamic. Everything revolved around their care. Vacations were planned around their needs. Their parents were absent for a lot of their siblings life. I fear for the time, just after the loved one will be taken, what will the sibling/s feel? How will they react? How will we react? I know there will be sadness, but what other emotions will be lurking around? Anger? Resentment? Maybe even a sense of relief? How will we deal with that? I think it's important to start dealing with these emotions wh...

Embarrassing or infuriating?? Both.

This special needs journey has been entertaining. It has been scary. It has been educational. It has been down right depressing at times. It has been humerous. All of these emotions have been present for a while, and we experience most of them daily. It has also been embarrassing. But we got used to the dirty nappies at inoppertune times. We even got used to impolite stares and whispers. All of these moments have been embarrassing in a way, but we got over it and learned how to cope with them. We have recently begun to deal with issues that were not present before. It is embarrassing, but it also reminds me of how uninformed people can be. We attended my niece's birthday party and one of the moms told my sister that she was worried because my son would be attending. She was worried he would try something with one of the girls. Now, for those who don't know Jacques, that is just plain hilarious. It is funny because Jacques doesn't understand sexuality. And it is hilarious be...

Our story, our journey.....

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