What makes a special needs family?

People can be cruel
Not think before they speak
But you just play the fool
Not bothered by what they seek

People can be curious
Or give you funny stares
Then you turn real serious
They're lucky all they get are glares

Cause mom's always there
The peacekeeper in her cape
Trying to keep things fair
With slaps and kicks we barely escape

Dads the back up, never far away
He's our own Clark Kent
We know he'll always stay
Lucky for us he's not just for rent

Lil bro brings up the rear
And he's wound tight
But it's not from fear
All he really wants to do is fight

Fight the rude stares and judgement
This little warrior protects his own
Mom and dad stand in agreement
Proud of how much he has grown

We didn't choose this life
And definitely wouldn't, had we a choice
But despite the struggles and strife
We still have reason to rejoice

This journey has not been dull
We have learned a lot
Met many interesting people
And oh boy, have we fought

Fought for acceptance
And sometimes we'd succeed
But sometimes had to distance
Otherwise we'd just bleed

So if you share our journey
Please comment and say hi
You can help us share our plea
And help us, the odds defy

Comments

Our greatest fears came true for a friend of mine.

The third angel I had the privilege of knowing has passed away. And my heart breaks for all of the parents of the kids taken away so young. This is a pain I am not yet familiar with, but it is the pain I know that will hurt the most. This is the pain many special needs family's fear more than any diagnosis or treatment. The pain of saying goodbye to the person who formed you more than anything or anyone else ever could. And this special person formed the whole family dynamic. Everything revolved around their care. Vacations were planned around their needs. Their parents were absent for a lot of their siblings life. I fear for the time, just after the loved one will be taken, what will the sibling/s feel? How will they react? How will we react? I know there will be sadness, but what other emotions will be lurking around? Anger? Resentment? Maybe even a sense of relief? How will we deal with that? I think it's important to start dealing with these emotions wh...

Hobbies - sanity saving stuff!

I haven't written anything in a while. Mostly because I've been keeping myself busy, quite productively I must say. I started a whatsapp group more than a year ago, where I sell items I find at thrift stores. I hit an emotional bump in the beginning of the year and stopped the group for a few months. After some self reflection, I started the group again, and it's been keeping me occupied. And thus away from sinking into depression again. Depression as a result of PTSD from special needs parenting. But I have posted about this before, and this post is about positivity and hope. So I won't be going into depressing subjects today. My whatsapp group's name is Interestingfinds. And that's exactly what I sell on the group. Treasures I find in thriftstores and similar stores. I also have a bidorbuy account where I sell similar items. But the whatsapp group has been really therapeutic. I get to interact with other people (electronically) and I have made quite a few fr...

Footprints of a giant.

Isn't life strange? When I was a child I had a very close relationship with my father. He was my hero, I looked up to him and I have him to thank for my love for music. His passion for classical (and church) music was my inspiration and the reason I learned to play the piano. My mother was the reason I continued with the piano lessons. Her encouragement when I wanted to give up is what pushed me towards becoming a moderately talented pianist. I have come to realize, in the almost two years since her death, that my mother was my real inspiration in life. And thankfully she still is. When I am sad and discouraged, it is her voice I hear. I can hear it clearly in my mind, encouraging me not to give up, and then I feel her presence so very clearly next to me. And with her ever present nearness I have nothing to fear or be sad about. These last few years have been an eye opening experience. Ever since my mom's passing I have been struggling with my spiritual life. I h...

Our story, our journey.....

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